Support was provided by 12 Finger Outdoor Adventure. Individuals with Fragile X and siblings of those affected by Fragile X were given the opportunity to rock climb outdoors in a picturesque Utah canyon.
Cycle Ability is holding their 2nd Annual Bicycle Camp and registration is now open! Spots are limited, so register early. Programs like this are available around the country, but now we have one here in Utah. These programs are amazing! For a child with a developmental disability, learning to ride a two-wheeled bike gives the child a real sense of accomplishment and independence.
Here's some information for local families. The University of Utah Neuropsychiatric Institute is holding a conference this summer for caregivers, social services professionals, and medical professionals. Register early since space is limited.
On March 1-2, 2016, travel to Washington, DC to visit Members of Congress and speak with them about the priorities of the Fragile X community. As many of our advocates will tell you, things get done through this important annual event.
We are going to do a virtual Parade of Pumpkins this year! Although, we may not be holding an actual event this year, we are going to try a social media SLAM for awareness! Please post this to ALL of your friends and family and hopefully we can still use this awesome season to spread awareness about Fragile X Syndrome.